Exciting news

topic posted Thu, January 29, 2009 - 1:02 AM by  Lisa
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Hi Everyone!

Let me start by saying this is a looooong post, so really you only need read the first couple of paragraphs if you want. Friend or stranger, please feel free to contact me any time, and please feel free to forward this as far and wide as you'd like.

My husband and I have an 8 year old son who was diagnosed with Autism when he was four years old. Over the last four years, we have spent tireless hours researching possible causes and treatments, talking to parents and doctors, participating in research studies and trying new, progressive and sometimes even controversial treatments. It has been a long, hard road full of exhasting days and frustrating moments, but even more than that many grand moments of inspiration and victory.

Our latest and most incredible news is this:
Last month Ricky was re-evaluated by his psychologist, occupational therapist, speech and language pathologist and others to determine how he is progressing. I was called in to a meeting to discuss the test findings and I was told this: Ricky no longer meets the criteria designated to qualify as Autistic. Let me say that again. Our son is no longer Autistic. I asked if they had ever heard of anyone "losing" an autism diagnosis. They all said no. Never. The Psychologist said she considered it "nothing short of miraculous" and wouldn't believe it if she hadn't seen it for herself. At the end of the meeting I left the room and as I was walking away tears began to stream down my face. This is what we believed in, this is what we worked for, this is what we did. Autism is NOT a lifelong sentence. How could it be so if we reversed it?

Now, these professionals had never heard of someone "recovering" from Autism, but let me tell you - I am hearing it more and more. Our research led us to a fast growing and forward thinking group of parents and doctors who believe that Autism and related disorders like Aspergers, PPD/NOS, ADD/ADHD, speech delay etc are treatable and even reversible. I know of hundreds of families who are using the treatments we used and who are getting their kids out of the fog of these horrible afflictions.

Most parents will report that their Autistic children are born healthy and develop normally for the first year or two of life and then something happens.. something that takes their child away. They begin to regress, to slip away. Eye contact stops. Smiles and laughter go away. Language stops developing and often disappears. They aren't interested in other kids, in toys, in social interaction and emotional reciprocity. They become preoccupied with specific things or parts of things, become sensitive to touch, bright light or sounds. They exhibit self stimulatory behavior like hand flapping, spinning and rocking. The list goes on and on.

What happens that causes these kids to slip away? Western medicine will say this is a genetic life-long illness with little hope of improvement. How can that be if Autism has gone from 1 in 10,000 to 1 in 150 in just a few short decades? How can that be if our kids were fine for the first year or two of life and then lost them? Why can't we get them back? These were the questions I asked. We refused to believe that there was little to be done. We knew our son, we knew he was in there and we were determined to get him back. If he was fine, and then suddenly he was not... how do we fix it?

We have come to believe that Autism and related disorders are often illnesses of the body that become so bad they affect the mind. Heal the body, heal the mind. The treatments we have done are nothing radical in our opinion, they make sense. We feed him healthy food and use quality vitamins, minerals and other supplements like probiotics and digestive enzymes. We use B-12, cod liver oil, glutathione (a naturally occuring anti-oxidant made by the liver) and most importanty in our case, treatments for out of control viral infections and chelation therapy to remove toxic levels of heavy metals. Our son was tested by doctors and found to have toxic levels of lead, mercury and aluminum in his body. Why? He wasn't exposed to any more than any other kid his age, but we found his body is unable to remove these metals on it's own. Look on the internet for the symptoms of heavy metal poisoning and they are nearly identical Autism. With each round of chelation we did we saw huge leaps in his social interaction, eye contact and social language. His fine motor skills improved and he started to write and draw. His recovery happened so fast and the reason became obvious to us.

I know this is getting long so I will stop here. There are so very many things I could share and so many stories to tell, but this is a post and not a novel. The point is this:

Autism is preventable, treatable and reversible. We did it. Many other parents have too. It isn't always as simple as removing heavy metals or changing diet as each child is different, but sometimes the simplest seeming littlest things can make such a huge difference. I am more than happy to share our story with anyone anytime! Please feel free to cross post or forward this to anyone you know and I will gladly talk to anyone - friend, family or complete stranger - about what we have done. Parents need to know there is so much that can be done, and they can do most of it themselves. There is a huge network of parents worldwide that are out there doing these things and supporting one another. There is hope.

with much love
Lisa Mize
Ricky's mom
lkmize@yahoo.com


Resources:
www.generationrescue.org
www.autism.com
www.safeminds.org
posted by:
Lisa
Phoenix
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  • Re: Exciting news

    Thu, January 29, 2009 - 12:09 PM
    I would like to know what some of these controversial treatments may be. I would also like an explanation of how there can be so many Autistic athletes on the fields and in the gyms with neuro-typicals if Autism is, as you put it, "illnesses of the body that become so bad they affect the mind". As an Autistic, I've personally gone through phases of excellent physical health as well as illness, just as any other.

    Furthermore, I'd like to know why you perceive Autism as something so tragic that it must be prevented, treated and reversed. You yourself are not Autistic, so how could you know if it's really so bad~? Sure, Autistics have to learn, develop and otherwise go through life differently, but really, why must a square peg be mercilessly beaten into a round hole~? Isn't it easier on everyone if Autistics are accommodated rather than put through hell~?

    Furthermore, I know that Autistics face a unique tendency towards certain health problems. Isn't it more logical to treat such health problems than to use them as evidence of the evils of idiosyncrasy~? Sure, I'll never make eye contact with you. I'd like to see any one of you try to shove cod liver oil down my throat. Sure, I suffer from acute migraine headaches, but that's why God invented Topiramate.
    • Re: Exciting news

      Fri, February 6, 2009 - 12:12 PM
      I have some strong feelings regarding the "curing" of Autism. I won't go into all of them but I will share some of them.

      First, I would like to know what proportion of children who are "cured" of Autism had Autism at all. So far, many of the stories I hear refer to children who had regressive Autism, where it presented after apparently normal development. Did they have other conditions that appeared to be Autism, but the symptoms of which disappeared after treatment such as chelation (chemical chelation, by the way, is VERY dangerous. I'm glad you saw positive results.)? My own son was diagnosed at age 2, and is what professionals consider "early onset" - that is, he never reached many of the milestones set by developmental professionals. We have tried numerous treatments, including dietary intervention, vitamins and probiotics, auditory integration therapy, ABA, Floortime...we have seen wonderful progress with him but no huge "miraculous" change. Stories like this make me wary - did this little boy have the same kind of autism as my son? Sometimes these treatments simply don't work for some kids and actually do more harm than good. Then we parents keep getting bombarded with guilt bombs - if he isn't getting "cured" then it must be my fault because I'm either not doing enough or I'm doing it all wrong.

      Second, I'm kind of with The Good Doctor here. My son does not seem unhappy in his world. However, I do see him trying very hard to communicate with us and he does get frustrated when his message doesn't get through. I also get concerned that he is uncomfortable with his GI issues and he just can't tell me about it. But, these are issues that we are continuing to work through and he is doing wonderfully - he is starting to deliberately talk, spell, read, label and share his activities with us, and I see that there is so much inside his mind that he is learning to express in his own way. We are having to learn to shut the hell up and listen sometimes.

      Overall, I understand wanting to "cure" Autism. I do. It's scary for us parents when our children aren't following the Social Rules, don't come with a manual, and risk not being able to fend for themselves in this world - this is something we as a culture value highly. It's also scary when I see my son biting his arm with frustration and hurting himself when he can't get something out - that hurts me as well and I would love for it to stop (we are also working on this and seeing progress). I want to hold a conversation with him, ask him what's going on with him, have him show me what he loves, tell me he loves me. I went for years without that kind of reciprocity and it was very hurtful for me. However, I am learning that he does all of these things. I just don't always understand it.

      I wanted to cure my son. But after disappointment after disappointment, I am coming to terms with his Autism. I am learning to love who he is rather than who I want him to be. He has many strengths and I am focusing on those. I am continuing to address those things that might make him uncomfortable - diet, supplements, toxins, etc - but I no longer am frantic about finding a "cure". I am coming to believe that he has the kind of Autism that can't be "cured" - he's just wired that way. Therefore, it's more important that I learn the best way to help him learn, grow and cope in our Social World than troll around and throw money away on "cures".

      Please understand - I am very happy for your son's progress. But to tell people that autism can be cured simply isn't true for everyone. And, as Doc says...maybe we shouldn't worry so much about it.
  • Re: Exciting news

    Sun, February 15, 2009 - 2:28 AM
    That is pretty amazing.
    • Re: Exciting news

      Sun, February 15, 2009 - 3:07 AM
      There are many harmful aspects of Autism that I feel are not beneficial to the child who is dealing with it. I really dont see it as a matter of trying to fit in with the status quo. I suppose that might be an issue for some people but that should take a back seat to the childs well being. I think most of the effects of autism are not beneficial and if they can be undone they should be.

      I do not believe that Autism is just one condition. As to whether these cases are "real" autism, we dont really understand what "autism" is so how can we separate real from fake autism? We have autistic spectrum disorders with individual names, but those are categorized by symptoms rather than by cause, so there may be a variety of factors and perhaps a few separate conditions that present similar sets of symptoms that get lumped together by things which can be observed, even if they are in fact a different pathology.

      I believe some some children are experiencing the symptoms of autism because of exposure to mercury and other toxins.
      • Re: Exciting news

        Mon, February 16, 2009 - 3:55 PM
        >There are many harmful aspects of Autism that I feel are not beneficial to the child who is dealing with it.<

        Guess what~? I think there are many aspects of Neuro-typicality that are not beneficial to the child dealing with it.

        >I really dont see it as a matter of trying to fit in with the status quo.<

        Then why aren't all the mercury mothers and curebies pushing for reasonable accomodation rather than just a cure~?

        >I think most of the effects of autism are not beneficial and if they can be undone they should be.<

        Yet those of us with Autism don't get a say in this~?

        >I do not believe that Autism is just one condition.<

        Alright, then show me your scientific research results proving this.

        >As to whether these cases are "real" autism, we dont really understand what "autism" is so how can we separate real from fake autism?<

        "Real" and "fake" Autism is a Straw Man issue. Even the distinction between Kanner's and Asperger's is logically fallacious. If I were you, I'd all but disregard Pam's post -- it's well-intentioned though highly misinformed by modern standards.

        >We have autistic spectrum disorders with individual names, but those are categorized by symptoms rather than by cause, so there may be a variety of factors and perhaps a few separate conditions that present similar sets of symptoms that get lumped together by things which can be observed, even if they are in fact a different pathology.<

        Sounds like you're reading sources which are almost as old as I am.

        >I believe some some children are experiencing the symptoms of autism because of exposure to mercury and other toxins.<

        Oh, Jenny McCarthy has you convinced. After years of studying the science of this stuff, the mercury argument makes me want to bang my head on the table really, really hard and that's not just Autistic self injury.
        • Re: Exciting news

          Tue, February 17, 2009 - 2:52 PM
          Doc,

          I'm glad you responded to this. I am very curious to know what sources you suggest I do read regarding autism, since I seem to be out of touch with the current research. Also, if mercury poisoning is a non-issue regarding autism, how do you explain the apparent improvement in children with "autistic" behaviors?
          • Re: Exciting news

            Sat, February 21, 2009 - 7:51 PM
            Sorry Dr Awkward, but I do not agree with you. You have every right to your opinion, but so do I. Please cut the straw men. You accused me of not giving you a choice, but when did I do anything besides state an opinion?

            The reality is that Autism can result in disability. If we can prevent triggers that worsen Autism I think we should.

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